Please join us in our efforts to generate Awareness of Wolf-Hirschhorn syndrome. Our governor has appointed TODAY April 16th Wolf-Hirschhorn syndrome awareness day, a very rare genetic disorder. A chromosomal deletion of part of the short arm of the 4th chromosome. Wolf-Hirschhorn syndrome occurs in 1 out of every 50,000 births, there is no cure . Every case of Wolf-Hirschhorn syndrome is varried in severity most have heart problems and seizure disorders. Dylan 8, is severly delayed, is tube fed and has epilepsy.He can not walk or talk,he is mentally and physically like a newborn. Doctors don’t give our children any chance at all.But with many, many prayers he has overcome so much.We need awareness!!! From his parents, siblings, family and supporters we love our Dylan
